I just love this smiley face. This past week Alex got her new removable walking cast that she was measured for over two weeks ago. She...

Monday morning Alex woke with a fever. This was her first fever since she began the Sirolimus. Because of her immune-suppressed...

So much has happened since my last post. Super Bowl party, Snow day fun, precious friends, Dance Party, first music lessons, bike rides,...

Even though there is a lot of hard in life right now Alex continues to smile and find the wonderful in life. She encourages me to...

We have a dear friend who is currently walking through her own valley. Several weeks ago, as we were feeling the heaviness of decision...

We went to Greenville SC for a second opinion appointment at Shriners Orthopedic Hospital. The bonus of the hospital being in Greenville...

This week Alex had a second opinion appointment in SC. As a little break from all medical information, I think I will share a little bit...

On the 6th of January, Alex had her first non-sedated MRI. We were amazed by this little five year old and how brave and strong she was....

This is our new friend, Michael. He is one of the nurses at Vanderbilt and handled Alex's blood draw so beautifully on Thursday. It was...

LaRue drew this and copied the verse for me shortly after Alex's first hospital stay. It has been a great encouragement to me. One...

I wanted to write a brief overview of what has transpired in our family's life, and especially Alex's life, since May of 2019. It had...

This is Alex. As most of you know she is the 5th of our 6 children and she has a rare Vascular Malformation called Gorham-Stout Disease....