top of page
Search

An update and a prayer request

The photo above was taken in between doctors appointments two weeks ago. We had three hours to kill after our meeting with the rehab...

Infusion day, again!

Second, and hopefully last infusion she will need. With the special blanket Aunt Marie made for her Alex bravely faced another infusion...

Oh, happy news!

It has taken me almost two weeks to get this written. Not because I didn’t want to write it but because every day seems to start with a...

Life while we wait and pray!

Yesterday, August 19th, turned out to be a very different day than we thought it was going to be a few weeks ago. It was scheduled to...

A wonderfully full weekend and then some!

I started this post last week and never got it finished. There is so much to share, so much to do, and so little time to do it all but...

Another setback and an encouragement.

Late last week we got a phone call saying there is a problem with insurance and if it weren’t able to be worked out quickly they would...

Birthdays, family river adventures, and Ethan update.

Our beautiful daughter, LaRue, left her pre teen years behind and entered her teen years on the 12th of this month. This girl is full of...

How can we help? (UPDATED)

Updated photo to go along with the updated post. She was playing hide and seek at the playground, her version anyway! It was fun! This...

Ethan’s Pectus surgery

Last Thursday afternoon several friends stopped by to drop off gifts for Ethan and to pray with him before his surgery. Grandma and Pap...

Because life was not exciting enough! 😄

Today’s post will focus on our oldest son, Ethan. He will be 15 years old on July 20th. Since he was a little guy he has had mild...

Cast off and Infusion day

Monday morning Alex and I took off for a day of appointments at Vanderbilt. It started with our visit to the cast room and orthopedics...

Construction house and having fun!

When we realized we were dealing with a disease that no matter which treatment route we went would mean many physical obstacles for Alex,...

Life of a little family on a tiny farm!

Update: This was actually written several weeks ago but somehow never posted. I still wanted to publish it because it gives a fun...

Surgery is scheduled / Recapping the year!

In many regards, it has been a very long year and 1 month. There have been so many ups and downs along the way. On Tuesday we got word...

4th fracture and first dislocated knee.

This was taken last Sunday afternoon to send to family and ask for prayer. She told me she wanted a smiley picture but if you look...

MRI day, results day and everything in between.

Friday May 8th Alex had her recheck full body MRI. The last full body was done on July 11, 2019. She has had three other MRI’s since...

A major milestone

This photo was taken one year ago. May 4, 2019 And this was her silly selfie today, one year later. May 4, 2020. May 4th started with...

Blessings I find in quarantine

As we move one day at a time through this new life experience I find myself counting my blessings. I have enjoyed utilizing social media...

Questions, Answers, Confusion, and Fun

While we were in Florida we received word that the first Covid-19 case had been confirmed in our area. We knew we would be coming home...

To Florida we go!!

When a child has a passion for dance she doesn't let a little old bone disease get in her way. This girl gets creative and is always...

bottom of page